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October 3, 2025
Cynthia Oxman has given a presentation about navigating caregiver issues: the challenges caregivers face, and strategies for improving caregivers' well-being when facing those challenges.
Cynthia Oxman, MSW, is a retired social worker who spent many years with palliative care patients on the oncology unit at the Red Deer Regional Hospital Centre in Red Deer, Alberta, Canada. In her capacity, she supported both patients and family members.
If you have any questions about this presentation, please contact us.
Cynthia Oxman, MSW, is a retired social worker who spent many years with palliative care patients on the oncology unit at the Red Deer Regional Hospital Centre in Red Deer, Alberta, Canada. In her capacity, she supported both patients and family members.
If you have any questions about this presentation, please contact us.
October 1, 2025
[CCRAN] Registration Now Open – CCRAN’s 2025 Early Age Onset Cancer Symposium
Registration is now open for the 5th Annual Early Age Onset Cancer Symposium, hosted by the Colorectal Cancer Resource & Action Network (CCRAN).
This free, virtual event takes place on November 20–21, 2025 and will bring together expert and patient voices from across Canada and beyond.
Expect dynamic sessions on:
For more information, visit www.ccran.org or email info@ccran.org.
Registration is now open for the 5th Annual Early Age Onset Cancer Symposium, hosted by the Colorectal Cancer Resource & Action Network (CCRAN).
This free, virtual event takes place on November 20–21, 2025 and will bring together expert and patient voices from across Canada and beyond.
Expect dynamic sessions on:
- Early cancer detection in younger adults
- Lowering the screening age for colorectal cancer
- Personalized treatment, immunotherapies, and genomic profiling
- Fertility, financial navigation, and survivorship
- Patient advocacy and system-level reform
For more information, visit www.ccran.org or email info@ccran.org.
September 23, 2025
[CHCC] September 2025 Newsletter Released
The CHCC September 2025 newsletter can be viewed in the Newsletters section.
The newsletter talks about recent and upcoming events related to HCC and CCA, as well as patient stories.
[View CHCC Newsletters]
The CHCC September 2025 newsletter can be viewed in the Newsletters section.
The newsletter talks about recent and upcoming events related to HCC and CCA, as well as patient stories.
[View CHCC Newsletters]
September 4, 2025
The trivia walk is now live, and will run from September 4 through September 10.
You can play by entering the following URL in your web browser: https://triviawalk.com/play
If you don't have a course in your area, please contact us, and we will add a course for you!
You can play by entering the following URL in your web browser: https://triviawalk.com/play
If you don't have a course in your area, please contact us, and we will add a course for you!
August 31, 2025
This is a recording of the August 28, 2025 webinar entitled, "Integrating Stereotactic Body Radiation Therapy (SBRT) in Treatment Algorithms for Liver Cancer" by Dr. Laura Dawson & Dr. Jennifer Knox.
Dr. Laura Dawson is a Professor and Chair of the Department of Radiation Oncology at the University of Toronto. She is a Radiation Oncologist in the Radiation Medicine Program at the Princess Margaret Cancer Centre, University Health Network (UHN).
Dr. Jennifer Knox is a Professor of Medicine at the University of Toronto, Co-Director of the McCain Centre for Pancreatic Cancer, and Lewitt Chair in Pancreatic Cancer Research. She is a staff Medical Oncologist at the Princess Margaret Cancer Centre, University Health Network (UHN).
If you have any questions about this presentation, please contact us.
[Watch on YouTube]
August 13, 2025
On August 28, CHCC is hosting a Zoom webinar by Dr. Jennifer Knox and Dr. Laura Dawson entitled, "Integrating SBRT in Treatment Algorithms for Liver Cancer."
SBRT = Stereotactic Body Radiation Therapy
If you would like to sign up for this webinar, please contact us.
Thank you to Cynthia Mitchell and the Manitoba Cholangiocarcinoma Community for creating this infographic!
SBRT = Stereotactic Body Radiation Therapy
If you would like to sign up for this webinar, please contact us.
Thank you to Cynthia Mitchell and the Manitoba Cholangiocarcinoma Community for creating this infographic!
August 2, 2025
In this video, Brenda Clayton discusses compassion fatigue and strategies to manage it.
Compassion fatigue is a form of psychological stress. It occurs when individuals are caring for others in high-stress environments.
If you have any questions about this presentation, please contact us.
Compassion fatigue is a form of psychological stress. It occurs when individuals are caring for others in high-stress environments.
If you have any questions about this presentation, please contact us.
July 28, 2025
World Hepatitis Day is July 28. The colours for hepatitis awareness are green (hepatitis B), yellow and red (hepatitis C), and purple and yellow (autoimmune hepatitis).
July 21, 2025
CHCC is planning a virtual trivia walk, to be held later this summer.
If you would like to participate, please contact us, and we will add a virtual course in your area!
If you would like to participate, please contact us, and we will add a virtual course in your area!
June 21, 2025
Cynthia Oxman has given a presentation to assist caregivers experiencing anticipatory grief: what it is, and strategies for coping.
Cynthia Oxman, MSW, is a retired social worker who spent many years with palliative care patients on the oncology unit at the Red Deer Regional Hospital Centre in Red Deer, Alberta, Canada. In her capacity, she supported both patients and family members.
If you have any questions about this presentation, please contact us.
Cynthia Oxman, MSW, is a retired social worker who spent many years with palliative care patients on the oncology unit at the Red Deer Regional Hospital Centre in Red Deer, Alberta, Canada. In her capacity, she supported both patients and family members.
If you have any questions about this presentation, please contact us.
June 12, 2025
The second Thursday in June is designated Global Fatty Liver Day. On this day, buildings across Canada are lit green to raise awareness about fatty liver disease.
Fatty Liver disease, also called MASLD (metabolic dysfunction associated steatotic liver disease) is a risk factor for liver cancer. It affects approximately 25% of all Canadians and is when too much fat is stored in the liver; this is non-alcoholic in nature (Liver Canada, 2025)
Supporters were able to capture this event in the following photographs. Thank you everyone for sharing these beautiful photos with us!
Fatty Liver disease, also called MASLD (metabolic dysfunction associated steatotic liver disease) is a risk factor for liver cancer. It affects approximately 25% of all Canadians and is when too much fat is stored in the liver; this is non-alcoholic in nature (Liver Canada, 2025)
Supporters were able to capture this event in the following photographs. Thank you everyone for sharing these beautiful photos with us!
May 27, 2025
On May 21, Jessica Andersen gave a presentation about nutrition and cancer over Zoom for CHCC. You can watch an edited version of this presentation below or on our YouTube channel.
Jessica Andersen is a registered dietitian at the Red Deer Regional Hospital Centre in Alberta, Canada. She has been a practising dietitian for about 8 years and she has extensive knowledge of dietetics (the study of human nutrition in health and disease).
If you have any further questions about this presentation, please contact us.
Jessica Andersen is a registered dietitian at the Red Deer Regional Hospital Centre in Alberta, Canada. She has been a practising dietitian for about 8 years and she has extensive knowledge of dietetics (the study of human nutrition in health and disease).
If you have any further questions about this presentation, please contact us.
May 16, 2025
[Toronto Star] Ontario government aims to fast-track cancer drugs in new pilot project
The new program will get the latest cancer drugs to patients at least nine months faster.
The province is planning to pilot a new program to get the latest cancer drugs to patients at least nine months faster.
Premier Doug Ford had been urging other provincial and territorial leaders to join Ontario in trying to fast-track life-saving drugs.
[Read the full article]
The new program will get the latest cancer drugs to patients at least nine months faster.
The province is planning to pilot a new program to get the latest cancer drugs to patients at least nine months faster.
Premier Doug Ford had been urging other provincial and territorial leaders to join Ontario in trying to fast-track life-saving drugs.
[Read the full article]
April 24, 2025
[CTV News] Ontarians could get funded access to new rare cancer treatment thanks to Kitchener, Ont. woman’s advocacy
Ontarians could soon have funded access to a promising new treatment for a rare and deadly form of cancer thanks, in part, to a Kitchener, Ont. woman’s advocacy.
Noor Ayesha’s fight for access was cut short when she died late last year from cholangiocarcinoma, also known as bile duct cancer.
Although, the drug Pemigatinib, sold under the brand name Pemazyre, helped extend her life, it came with a roughly $15,000 per month price tag.
[Read the full article]
Ontarians could soon have funded access to a promising new treatment for a rare and deadly form of cancer thanks, in part, to a Kitchener, Ont. woman’s advocacy.
Noor Ayesha’s fight for access was cut short when she died late last year from cholangiocarcinoma, also known as bile duct cancer.
Although, the drug Pemigatinib, sold under the brand name Pemazyre, helped extend her life, it came with a roughly $15,000 per month price tag.
[Read the full article]
April 21, 2025
World Liver Day is observed every year on April 19. Facilities across Canada lit up green. This is a day to promote global health awareness about the importance of liver health and early detection of liver diseases.
April 15, 2025
[CTV News] 'A chance to live': Albertans boosted by access to new cancer treatment
Canadians will now have access to a promising new treatment for a rare, deadly form of cancer, thanks to the help of advocates—including some Albertans—lobbying two levels of government.
Pemigatinib (brand name Pemazyre) can be used to fight cholangiocarcinoma, also known as bile duct cancer.
The Canadian Drug Agency previously decided not to recommend Pemazyre but has now reversed that decision due to feedback from doctors and patients, including Jennifer Nielsen of High River.
[Read the full article]
Canadians will now have access to a promising new treatment for a rare, deadly form of cancer, thanks to the help of advocates—including some Albertans—lobbying two levels of government.
Pemigatinib (brand name Pemazyre) can be used to fight cholangiocarcinoma, also known as bile duct cancer.
The Canadian Drug Agency previously decided not to recommend Pemazyre but has now reversed that decision due to feedback from doctors and patients, including Jennifer Nielsen of High River.
[Read the full article]
April 3, 2025
[CDA-AMC] CDA-AMC recommends Pemazyre (pemigatinib) for Reimbursement with Special Conditions
The CDA-AMC pERC recommends that Pemazyre (pemigatinib) be reimbursed for the treatment of adults with previously treated, unresectable locally advanced or metastatic cholangiocarcinoma (CCA) with a fibroblast growth factor receptor 2 (FGFR2) fusion or other rearrangement only if the conditions listed in Table 1 of the Draft Recommendation are met.
[View Full Details of CDA-AMC Reimbursement Review]
The CDA-AMC pERC recommends that Pemazyre (pemigatinib) be reimbursed for the treatment of adults with previously treated, unresectable locally advanced or metastatic cholangiocarcinoma (CCA) with a fibroblast growth factor receptor 2 (FGFR2) fusion or other rearrangement only if the conditions listed in Table 1 of the Draft Recommendation are met.
[View Full Details of CDA-AMC Reimbursement Review]
March 27, 2025
[CHCC] March 2025 Newsletter Released
The CHCC March 2025 newsletter can be viewed in the Newsletters section.
The newsletter talks about recent and upcoming events related to HCC and CCA, as well as patient stories.
[View CHCC Newsletters]
The CHCC March 2025 newsletter can be viewed in the Newsletters section.
The newsletter talks about recent and upcoming events related to HCC and CCA, as well as patient stories.
[View CHCC Newsletters]
February 27, 2025
Harold Kelly discusses the Light Up Green event and cholangiocarcinoma on Open Line with Paddy Daly. Starts around 1:14:00
February 25, 2025
Thanks to everybody for participating in the World CCA Day 2025 Light Up Green event, and for submitting their photos!
February 23, 2025
[OncoHelix] Cynthia Mitchell shares her story with OncoHelix for World Cholangiocarcinoma Day
"Knowledge is our ally."
Cynthia Mitchell shares her journey with incurable cholangiocarcinoma on this important day—World Cholangiocarcinoma Day. As one of the rarest cancers, cholangiocarcinoma presents immense challenges, and Cynthia’s experience is a testament to resilience, advocacy, and the power of knowledge.
[Read the full article]
"Knowledge is our ally."
Cynthia Mitchell shares her journey with incurable cholangiocarcinoma on this important day—World Cholangiocarcinoma Day. As one of the rarest cancers, cholangiocarcinoma presents immense challenges, and Cynthia’s experience is a testament to resilience, advocacy, and the power of knowledge.
[Read the full article]
February 20, 2025
February 20, 2025 was World Cholangiocarcinoma Day. Across Canada, facilities were lit green to recognize this day. As well, it was an opportunity for patients, caregivers, and advocates to meet and show their support for cholangiocarcinoma awareness!!! Here is a photo album of these places, and the people working tirelessly to bring attention to cholangiocarcinoma. Thank you to everyone who participated!
February 17, 2025
[CHEK News] Mom of two shares her battle with a rare and deadly cancer to help others
Greater Victoria mother of two Karla Bird is thankful for each day after almost dying from a rare cancer.
"I got really itchy hands and feet one night, and I didn’t know what was going on," Bird says.
The symptoms started in May of 2021, when Bird was pregnant with her second child. At first, they thought it was a complication of pregnancy. But after her son was born, her symptoms got worse.
[Read the full article]
Greater Victoria mother of two Karla Bird is thankful for each day after almost dying from a rare cancer.
"I got really itchy hands and feet one night, and I didn’t know what was going on," Bird says.
The symptoms started in May of 2021, when Bird was pregnant with her second child. At first, they thought it was a complication of pregnancy. But after her son was born, her symptoms got worse.
[Read the full article]
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©2025 Cholangio-Hepatocellular Carcinoma Canada
Charitable Registration Number 709631014 RR 0001
©2025 Cholangio-Hepatocellular Carcinoma Canada
Charitable Registration Number 709631014 RR 0001